What is Cystic Fibrosis?
Cystic Fibrosis (CF) is a relatively common inherited disease in which from infancy there are recurrent chest infections causing lung damage, intestinal malabsorption leading to severe malnutrition and growth failure, and there is an excess of salt in the sweat. Untreated, the condition is usually fatal in infancy or early childhood. With treatment, the average life expectancy of people who live to adulthood is about 37 years and this is increasing. (Credit: Cystic Fibrosis Australia)
May Is National Cystic Fibrosis Awareness Month. Across the country, thousands of volunteers will come together to raise awareness about this devastating disease. They will tell their story of hope and progress.
Facts about Cystic Fibrosis
- There is currently no cure
- In Australia, one in 2,500 babies are born with CF, that’s one every four days
- There are over a Million carriers of CF in Australia
- Since 1986, all newborns have been subject to a heel prick test for diagnosis
- People with CF are not encouraged to socialise with each other. The risk of cross-infection and exacerbation of lung conditions is too great. CF can be a lonely existence.
Is there hope for a cure?
Yes, there is hope for a cure! Around the world, people are conducting research. With help from donations, research can be done.
When CF was first described in 1939, patients lived only days or months. Today, CF patients live well into adulthood with a better quality of life. And the outlook is getting better as treatments advance.
Who is Cystic Fibrosis Australia?
Cystic Fibrosis Australia (CFA) is the national peak body for cystic fibrosis and works with state and territory partners to achieve national priorities. Their core responsibilities are to ensure the availability and accessibility of new treatments, fund vital research, advocate for increased support and quality improvement in health care to people with CF.
Our organisation receives no government funding which means they rely on the support of individuals to help raise essential funds to resource the research projects. CFA is committed to some bold targets and with your support will allow them to continue to work tirelessly with researchers and clinical teams to help reach their goal.
How is Sanitair contributing to Cystic Fibrosis Awareness Month?
For the month of May, a number of local Sanitair technicians are donating a percentage of every Premium Split System Clean they do. The funds go toward Cystic Fibrosis Australia. 65 Roses is their national fundraising campaign held in May with the last Friday being their National Day
Recently, we received a wonderful review from one of our customers in the Central Coast whose son is diagnosed with Cystic Fibrosis:
Thank you so much Sanitair for wanting to fund raise for Cystic Fibrosis, it means so much to our family. We recently used the services of Sanitair after discovering mould on one of our air conditioning units. Our 2 year old son has Cystic Fibrosis which has made us more conscious of the dangers to our health from pollutants and bacteria. Trent booked us in for our 2 units to be cleaned and we were shocked and amazed at how dirty the water was after the service. Just seeing the water sickened us as to what we were breathing in. As both units were only 18 months old, we had no idea that they could be so dirty. We were impressed with the prompt and professional service and will definitely be using Sanitair for our next aircon clean. Having your air conditioners cleaned is a MUST for everyone. ~ Caron and Matt